I will be attending the Biennial FSHD International Patient and Researcher Network Meeting in Las Vegas this weekend with Terry Colella from Friends of FSH.  I am excited to get to talk to others with FSH and find out exactly what is going on out there in terms of research.  Check back soon as I will be taking detailed notes with the attempt to relay any information to those who were unable to attend the conference.  

Also, Andy is racing a 5K tomorrow in Boston in hopes of placing in the top 3 finishers.  The top 3 will receive money to donate to their favorite charity and Andy has chosen Friends of FSH.  Good luck Andy!  Results posted soon!

Risk vs Reward.... Hiking the Napali Coast

Coming soon......

Kalalau Trail - Na Pali Coast

With Johnny on the Napali Coast