I will be attending the Biennial FSHD International Patient and Researcher Network Meeting in Las Vegas this weekend with Terry Colella from Friends of FSH. I am excited to get to talk to others with FSH and find out exactly what is going on out there in terms of research. Check back soon as I will be taking detailed notes with the attempt to relay any information to those who were unable to attend the conference.
Also, Andy is racing a 5K tomorrow in Boston in hopes of placing in the top 3 finishers. The top 3 will receive money to donate to their favorite charity and Andy has chosen Friends of FSH. Good luck Andy! Results posted soon!